Help Save Little Ayah ... She's 14 Months Old And Needs A Drug That Costs $2.1 Million To Save Her Life - IReporteronline
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Help Save Little Ayah … She’s 14 Months Old And Needs A Drug That Costs $2.1 Million To Save Her Life

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his is Ayah (born on January 15, 2020), a bubbly little princess who likes to smile a lot. Ayah has a rare genetic and degenerative disorder called SMA (Spinal Muscular Atrophy) type 2.

SMA is a rare genetic disease that affects the central nervous system, voluntary skeletal muscle movement, and the peripheral nervous system (the connection between the central nervous system and the rest of the body). As a result, SMA affects basic motor functions such as walking, hand movements and feeding. After progression, the patients lose the ability to swallow, breathe and eventually die.

Help save little Ayah ... She
Since the diagnosis, Ayah has been put on Spinraza, a prescription drug administered as a spinal injection throughout a patient’s life. Spinraza increases the ability of the SMN2 gene (which is a back up of the SMN1 gene-the one that Ayah is missing) to produce SMN protein which in turn improves motor functions and survival.

Zolgensma is a new one-time gene therapy treatment for kids under the age of 2. It REPLACES the missing SMN1 gene with a new, working copy that helps motor neuron cells work properly and survive but it’s currently the most expensive drug in the world at $2.1 million. It is NOT a cure since it does not reverse the damage already caused by SMA before treatment. However, supportive therapy, it has by far shown the best results. It is recommended that the earlier the patient receives the treatment, the better.

Help save little Ayah ... She
We would like to invite you to help Ayah’s family, friends and network create awareness around this fundraising by sending us your prayers, positive thoughts, contribute financially and/or share this invitation with more networks so that we may reach as many helpful souls as possible. Every single contribution means the world to us.

We hope to get Ayah treated as soon as we raise all the funds needed.  $2.1 million will be used to buy the drug zolgensma. The remaining $300,000 and any additional donations will be used for treatment at Boston Children’s Hospital, travel and accommodation during our stay in the USA. Thank you so much for your kind donations!!

Please follow Ayah´s journey on :

Facebook: Little Ayah
Instagram: @little.ayah

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Bird Flu Outbreak: Bauchi, Toro LGAs Identified As Epicentres

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The Bauchi State Government, on Saturday, identified two local government areas of the state, Bauchi and Toro, as the epicentres of Avian Influenza, also known as bird flu.

The state Commissioner for Agriculture and Rural Development, Sama’ila Adamu Burga, informed that the state was among seven states in the country that had a resurgence of the highly infectious zoonotic disease since January this year.

According to the commissioner, Bauchi and Toro LGAs were badly affected by the bird flu disease, informing that about 50,000 birds at five and four farms in Toro and Bauchi respectively, were battling with the disease.

He added only last Thursday alone 27,000 birds culled in Narabi village in Toro Local Government Area and called on poultry farmers and the general public to adhere strictly to the guidelines on marketing and movement of poultry products, general hygiene and consumption of wholesome poultry and poultry products.

Burga emphasised on the need for the people of the state, particularly poultry farmers to be proactive in maintaining high standards of biosecurity on their farms, as well as maintaining due diligence in the sourcing of poultry and poultry products from reliable and certified sources.

Describing Avian influenza is a highly infectious disease, the commissioner warned that it could be transmitted from animals to humans, adding that the disease is well known to have caused human death as well as economic losses either directly through the loss of birds and their products or indirectly through losses in the poultry value chain.

Tracing incidence of bird flu in Nigeria, Burga informed that the disease was first recorded in 2006 at Sambawa Farms in Kaduna State, adding that it later spread to other states of the country and resurged in 2007, 2015, 2019 and this year.

The commissioner stated that the series of bird flu outbreaks had caused devastation, leading to loss of the sources of livelihood for many people in the poultry value chain.

He, however, expressed happiness that so far no human being had contracted the disease in the state, submitting that tests carried out by the Nigerian Centre for Disease Control (NCDC) in conjunction with his ministry and the state Ministry of Health had returned negative.

“It is gladdening to state that, so far, many of our poultry industry stakeholders such as poultry owners, workers, my field officers and live bird marketers were screened through a joint exercise between my ministry, Ministry of Health and NCDC. Samples were collected, sent to the laboratory and all the results turned out to be negative,” Burga informed.

While urging people of the state to promptly draw the government’s attention to suspected bird flu cases, the commissioner disclosed that the state Ministry of Agriculture had over 130 qualified veterinary doctors spread across the 20 local government areas of the state.

According to him, the veterinary doctors were always ready to attend to complaints from poultry farmers, marketers and indeed the general public.

He then urged for concerted efforts by all to curtail the current outbreak of the disease in the state, declaring that, “all hands must be on deck to ensure that the present wave is brought to a stop and prevent human infection in Bauchi State which can be a serious catastrophe.”

He said this became imperative in view of the recent disclosure by the NCDC that seven human cases of bird flu had been recorded in Kano and Plateau States.

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Health Benefits Of Soursop

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Soursop juice has been used for centuries as a form of pain reliever while pulverized seeds and concoctions made of leaves are also popular forms of natural remedies.

The rich nutrient content of soursop includes vitamin C, vitamin B, and a number of antioxidant compounds.

The fruit is mostly found in Mexico, the Caribbean, parts of South America, Africa, and Southeast Asia.

Patients suffering from respiratory ailments like a cough, cold, or other forms, soursop’s anti-inflammatory properties can help clear out airways, relieve congestion, and soothe irritation. Used partially as an expectorant, soursop is a reliable way to eliminate phlegm and mucus, where many pathogens can live.

If you’re suffering from insomnia or restless sleep, soursop tea is a wise choice. Soursop tea has been used for centuries as a stress relieving agent. There are certain anti-inflammatory and soothing properties of soursop that make it very effective for sufferers of excessive stress and anxiety.

Extensive research has been done on the organic compounds of soursop and it has been widely studied as an alternative cancer treatment.

Its antioxidant activity, which comes from acetogenins, as well as quinolones and alkaloids have been directly linked to cancer prevention and a reduction in the size of tumors. They can cut off blood flow to foreign or non-normal cellular growths, and have already been positively associated with treating breast, pancreatic, prostate, and lung cancers.

Adding a bit of soursop fruit to your diet, either through refreshing beverages or desserts, can positively impact your overall health. Rich in vitamin C, the soursop stimulates the production of white blood cells, while the concentration of antioxidants helps to neutralize free radicals and prevent chronic disease.

Soursop is famous for being a pain reliever. It has been applied to wounds and injuries for generations and also works internally to relieve pain and speed healing. The anti-inflammatory effect of this fruit makes it an ideal solution for all types of body pain.

Credit: Pulse.ng

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COVID-19: NCDC Records 39 New Infections

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The Nigeria Center for Disease Control (NCDC), recorded 39 new COVID-19 infections and zero death in the past 24 hours in the country.

It said the figure pushed a nationwide number of COVID-19 cases to 165,340 and the death toll to 2,065.

The NCDC disclosed this on its official Twitter handle on Friday.

It said that 30 people recovered and were discharged on Friday, which brought the country’s total recoveries to 155,454.

The health agency said that the newly-recorded COVID-19 cases were reported across seven states and the Federal Capital Territory (FCT).

“Lagos topped the list with 23 infections, followed by FCT’ 4, Kano 4, Zamfara 4, Akwa Ibom 1, Gombe 1, Nasarawa 1 and Plateau 1,” it said.

NCDC said that since the pandemic broke out in the country in February 2020, the nation had carried out 1,939,165 tests across the 36 states and the FCT.

It stated that a multi-sectoral national emergency operations centre (EOC), activated at Level 3, had continued to coordinate the national response activities.

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